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CHS survey of people with hemophilia A and their caregivers
In June and July 2024, the Canadian Hemophilia Society conducted an online survey regarding the lived experience of people with hemophilia A and their caregivers. The purpose of the...
Rendez-vous 2025
The Canadian Hemophilia Society is delighted to invite you to attend Rendez-vous 2025 coming up May 1-4, 2025, in Winnipeg. CLICK HERE for an overview of the event.
Biomarin limits marketing of its FVIII gene therapy, Roctavian
SAN RAFAEL, California, August 5, 2024 — Biomarin has announced that it will limit commercial, research and manufacturing programs for its factor VIII gene therapy valoctocogene roxaparvovec (Roctavian) to...
Don’t ever turn your back on your dreams!
My name is Andrea, and I am the mom to my son Nicklas, who has severe hemophilia A. I am writing today to share a truly heartwarming success story...
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Novel treatments in bleeding disorders: The European Haemophilia Consortium Review
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Playing a key role in shaping the future of people living with bleeding disorders
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Bringing experience and knowledge to the ongoing strength and effectiveness of the CHS
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Conflicting opinions on gene therapies from Canada’s two HTA agencies
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