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  • Title

    New shared decision-making tool (SDM) by the World Federation of Hemophilia

    CHS/SCH | 06/09/2023

    The World Federation of Hemophilia SDM Tool is an interactive decision-support system designed to facilitate discussions regarding treatment options between people with hemophilia A or B and/or caregivers and...

    Update on gene therapy for hemophilia

    David Page | 10/08/2023

    Montreal, August 10, 2023 – Gene therapies for hemophilia A and B continue to move closer to becoming reality. Health Canada is currently evaluating two gene therapies for hemophilia...

    Patient satisfaction survey

    CHS/SCH | 19/07/2023

    The Canadian bleeding disorder treatment centres participed in a rigorous self-assessment of their services from November 2022 to February 2023. IT IS NOW TIME TO HEAR FROM PATIENTS AND...

    Update on the 1986-1990 Hepatitis C Compensation Program

    Dan Doran | 14/07/2023

    As the result of the latest actuarial study to the end of the year 2019, the Joint Committee announced in early 2021 that the Fund of the 1986-1990 Hepatitis...

  • Features

    • Maia Meier | 04/08/2023

      Pushing the limits and reaching new heights

    • CHS/SCH | 17/07/2023

      Important survey about hemophilia B gene therapy – THE CLOCK IS TICKING!

    • CHS/SCH | 28/06/2023

      Climbing Mount Kilimanjaro for a good cause

    • Chantal Raymond | 08/06/2023

      The Serbia-Manitoba Chapter twinning partnership receives the WFH 2022 Twins of the Year award!

    • CHS/SCH | 07/06/2023

      In Memoriam – Dr. Ronald E. George

    • CHS/SCH | 02/06/2023

      2023 recipients of the James Kreppner Memorial Scholarship and Bursary Program

    • David Page | 23/05/2023

      Health Canada approves Alhemo (concizumab) for FIX inhibitors

    • CHS/SCH | 23/05/2023

      2022 CHS Annual Report

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  • Keywords

    ADVOCACY ageing A GLOBAL PERSPECTIVE AIDS CARRIERS CHS chapters Community COMPENSATION COVID-19 EMICIZUMAB GENE THERAPY HALF-LIFE FACTOR CONCENTRATES HEMLIBRA HEMOPHILIA A AND B HEPATITIS C HIV ICHIP INHIBITORS MYCBDR NURSING PHYSIOTHERAPY Platelet function disorders PROBE PROPHYLAXIS RARE BLEEDING DISORDERS RESEARCH SOCIAL WORK Tainted blood tragedy THE BLOOD FACTOR THE FEMALE FACTOR THERAPIES THE SAGE PAGE TWINNING VON WILLEBRAND DISEASE

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