Latest and Past News
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Aiming at better care now and in the future
I have been home from the WFH 2024 World Congress in Madrid for a month now and struggling a little as to how to synthesize...
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Three insightful perspectives on the WFH 2024 World Congress
Each World Congress brings together people from all over the world. What fun it is to see friends from previous times but also to...
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Access to emicizumab expanded
Montreal, May 24, 2024 – Canadian Blood Services (CBS) announced this week that the provinces and territories have agreed to expand access to emicizumab (Hemlibra)...
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Bridging the gap between generations and perspectives within our community
As a youth delegate representing Canada at the WFH 2024 World Congress, I found myself among experienced professionals, leaders of national hemophilia chapters, health care...
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A very special World Congress!
The WFH World Congress is a unique and special event where, in one location, you can experience both the highs and the lows of care...
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“Good governance committee work is the oil that keeps the ‘machine’ of charitable organizations running smoothly.”
PREAMBLE In our special series of articles on the numerous committees our volunteers sit on, it is our pleasure to now present you the Governance...
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Canadian Hemophilia Society’s tribute to Dr. Victor S. Blanchette
It is with much sadness that we report that, after a long and courageous battle with cancer, Dr. Victor Stanley Blanchette passed away on April...
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CHS national committees – What do they do? What are they?
You have heard us say it, you have read about it: we are deeply grateful for the work and time and dedication of our volunteers...
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Research projects funded in 2024
It is safe to say that research provides better quality of life and will lead, one day, inevitably to cures. This is why the Canadian...
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Update on hemophilia gene therapy in Canada
Montreal, March 26, 2024 – Developments in gene therapy for hemophilia B have come fast and furious over the last several months. In October 2023,...
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Update on coagulation products – current and in the pipeline
To access charts informing you of products in the PIPELINE, please CLICK HERE. To access charts informing you of CURRENT coagulation products, please CLICK HERE.
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Novel treatments in bleeding disorders: The European Haemophilia Consortium Review
CLICK HERE to access the periodic review of novel treatments in hemophilia and other bleeding disorders by the European Haemophilia Consortium.
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Opportunity to take part in a hemophilia B gene therapy trial
Hamilton, January 22, 2024 – McMaster University, in collaboration with CSL Behring, has announced a new gene therapy trial for etranacogene dezaparvovec (Hemgenix) in hemophilia...
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Health Canada approves Beqvez gene therapy for hemophilia B
Ottawa – January 3, 2024 – Health Canada has authorized Beqvez (fidanacogene elaparvovec), gene therapy for the treatment of hemophilia B. Beqvez is indicated for...