Latest and Past News
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Gene Therapy Education Program – A CHS comprehensive information program
The hemophilia community has been waiting for gene therapy for years; many hoped it would be a cure. Quantitative and qualitative results from late stages...
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Our continuing efforts to raise awareness about women and bleeding disorders
For almost 25 years, the CHS has played a key role in raising awareness about bleeding disorders that affect women. In 2012, to ensure the...
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Health Canada approves Hemgenix gene therapy for hemophilia B
Ottawa, October 26, 2023 – Health Canada has authorized Hemgenix (etranacogene dezaparvovec), gene therapy for the treatment of hemophilia B. Hemgenix is indicated for the...
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New shared decision-making tool (SDM) by the World Federation of Hemophilia
The World Federation of Hemophilia SDM Tool is an interactive decision-support system designed to facilitate discussions regarding treatment options between people with hemophilia A or...
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Update on gene therapy for hemophilia
Montreal, August 10, 2023 – Gene therapies for hemophilia A and B continue to move closer to becoming reality. Health Canada is currently evaluating two...
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Pushing the limits and reaching new heights
Kilimanjaro, the roof of Africa, a dormant volcano of 5,895 meters in height is a major hiking and climbing destination that about 35,000 people attempt...
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Patient satisfaction survey
The Canadian bleeding disorder treatment centres participed in a rigorous self-assessment of their services from November 2022 to February 2023. IT IS NOW TIME TO...
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Important survey about hemophilia B gene therapy – THE CLOCK IS TICKING!
The 1st gene therapy for hemophilia B (factor IX deficiency) is currently undergoing an evaluation by Canadian health authorities. This review will determine whether or...
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Update on the 1986-1990 Hepatitis C Compensation Program
As the result of the latest actuarial study to the end of the year 2019, the Joint Committee announced in early 2021 that the Fund...
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Climbing Mount Kilimanjaro for a good cause
On Friday, June 30, Maia Meier and Craig Upshaw, longstanding CHS volunteers, will start their climb to the top of Mount Kilimanjaro. Both Maia and...
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The Serbia-Manitoba Chapter twinning partnership receives the WFH 2022 Twins of the Year award!
It was with great pride that the CHS learned that the World Federation of Hemophilia (WFH) had granted the 2022 Hemophilia Organization Twins of the...
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In Memoriam – Dr. Ronald E. George
The CHS is deeply saddened to learn of the passing of Dr. Ronald George. We would like to offer our sincere condolences to his wife...
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2023 recipients of the James Kreppner Memorial Scholarship and Bursary Program
CLICK HERE to meet the 2023 James Kreppner Scholarship and Bursary recipients.
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Health Canada approves Alhemo (concizumab) for FIX inhibitors
Montreal – May 23, 2023 – The Canadian Hemophilia Society has learned that Health Canada recently approved Alhemo (concizumab) for the treatment of people, ages...