ADVOCACY
-
Patient-reported outcomes via MyCBDR and PROBE: essential to patient advocacy
Montreal, April 17, 2020 – In recent years, the creation of electronic tools that allow people with hemophilia (PwH) to report their health outcomes to...
-
Updated Standards of Care sent for endorsement
Montreal, April 17, 2020 – The Canadian Integrated and Comprehensive Care Standards for Bleeding Disorders have now been finalized and sent to stakeholders for endorsement....
-
Patients’ and caregivers’ “lived experience” crucial in CHS submissions on product access
It’s an exciting time in care for people with bleeding disorders. In recent years, a number of novel therapies have come through clinical trials and...
-
Twinning: A transformational experience
I have had the opportunity to be personally involved in several twinning partnerships, beginning back in 2001 with a twinning between Hemophilia Saskatchewan and the...