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FDA puts uniQure’s gene therapy clinical programme, HOPE-B, on hold following submission of a safety report
December 21, 2020 – The European Haemophilia Consortium (EHC) has learned that uniQure announced that its haemophilia B gene therapy programme, including the pivotal, phase...
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Announcement of a clinical trial for Vioxx for people with hemophilia
(…) The pain drug became synonymous with pharmaceutical risk more than 15 years ago when studies revealed that it roughly doubled patients’ risk of heart...
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CHS James Kreppner Memorial Scholarship and Bursary Program
Information including the criteria and application forms for the CHS James Kreppner Memorial Scholarship and Bursary Program is available on the CHS website at www.hemophilia.ca/james-kreppner-memorial-scholarship-and-bursary-program....
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Global dosing hold in fitusiran trials initiated by Sanofi Genzyme to investigate new adverse events
A joint statement of the World Federation of Hemophilia (WFH), European Haemophilia Consortium (EHC) and National Hemophilia Foundation (NHF) November 6, 2020 – The WFH,...
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A Patient Videoconference on Inhibitors & New Novel Therapies – Answering Your Questions!
On November 2, 2020, the CHS held a live educational videoconference aimed to improve the understanding of FVIII/FIX inhibitors and treatment options, with a...