ADVOCACY
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A very special World Congress!
The WFH World Congress is a unique and special event where, in one location, you can experience both the highs and the lows of care...
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CHS national committees – What do they do? What are they?
You have heard us say it, you have read about it: we are deeply grateful for the work and time and dedication of our volunteers...
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Update on hemophilia gene therapy in Canada
Montreal, March 26, 2024 – Developments in gene therapy for hemophilia B have come fast and furious over the last several months. In October 2023,...
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Health Canada approves Beqvez gene therapy for hemophilia B
Ottawa – January 3, 2024 – Health Canada has authorized Beqvez (fidanacogene elaparvovec), gene therapy for the treatment of hemophilia B. Beqvez is indicated for...
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Gene Therapy Education Program – A CHS comprehensive information program
The hemophilia community has been waiting for gene therapy for years; many hoped it would be a cure. Quantitative and qualitative results from late stages...