MYCBDR

The proven importance of data
David Page on 04/06/2024
In the context of the WFH 2024 World Congress, I was invited to present at the Data and Research Workshop on April 21 about how...
Patient-reported outcomes via MyCBDR and PROBE: essential to patient advocacy
David Page on 07/04/2020
Montreal, April 17, 2020 – In recent years, the creation of electronic tools that allow people with hemophilia (PwH) to report their health outcomes to...
Patients’ and caregivers’ “lived experience” crucial in CHS submissions on product access
David Page on 07/04/2020
It’s an exciting time in care for people with bleeding disorders. In recent years, a number of novel therapies have come through clinical trials and...

The proven importance of data