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Home / Articles posted by Michel Long
  • Best Medicines Coalition submission on high-cost drugs for rare diseases

    By Michel Long on March 29, 2021

    The Best Medicines Coalition (BMC) is a national alliance of patient organizations, together representing millions of patients, with a shared goal of equitable, timely and...

  • Findings from a CHS “Dream of a Cure” research project now published

    By Michel Long on July 8, 2020

    Findings from a two-year research project on inherited platelet function disorders led by Dr. Catherine Hayward of McMaster University as principal investigator, funded by a...

  • Interview with Nurul Islam, president of the Hemophilia Society of Bangladesh

    By Michel Long on May 21, 2020

  • Interview with Nurul Islam, president of the Hemophilia Society of Bangladesh

    By Michel Long on April 27, 2020

    Interview with Nurul Islam, president of the Hemophilia Society of Bangladesh, about the role twinning played on their success in getting their government to fund...

  • KEYWORDS

    ADVOCACY ageing A GLOBAL PERSPECTIVE AIDS CARRIERS COMPENSATION COVID-19 EMICIZUMAB GENE THERAPY HALF-LIFE FACTOR CONCENTRATES HEMLIBRA HEMOPHILIA A AND B HEPATITIS C HIV ICHIP INHIBITORS MYCBDR NURSING PHYSIOTHERAPY Platelet function disorders PROBE PROPHYLAXIS RARE BLEEDING DISORDERS RESEARCH SOCIAL WORK THE BLOOD FACTOR THE FEMALE FACTOR THERAPIES THE SAGE PAGE TWINNING VON WILLEBRAND DISEASE

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