Latest and Past News
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FAQs – COVID-19 vaccine and bleeding disorders
The Association of Hemophilia Clinic Directors of Canada (AHCDC) has issued a message to address the most frequent questions asked with regards to the COVID-19...
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COVID-19 vaccination guidance for people with bleeding disorders
CLICK HERE to read the joint guidance notice from the World Federation of Hemophilia (WFH), European Association for Haemophilia and Allied Disorders (EAHAD), European Haemophilia Consortium...
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FDA puts uniQure’s gene therapy clinical programme, HOPE-B, on hold following submission of a safety report
December 21, 2020 – The European Haemophilia Consortium (EHC) has learned that uniQure announced that its haemophilia B gene therapy programme, including the pivotal, phase...
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Announcement of a clinical trial for Vioxx for people with hemophilia
(…) The pain drug became synonymous with pharmaceutical risk more than 15 years ago when studies revealed that it roughly doubled patients’ risk of heart...
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CHS James Kreppner Memorial Scholarship and Bursary Program
Information including the criteria and application forms for the CHS James Kreppner Memorial Scholarship and Bursary Program is available on the CHS website at www.hemophilia.ca/james-kreppner-memorial-scholarship-and-bursary-program....
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European Haemophilia Consortium New Products Review
Read the latest research news about innovative coagulation products – factor replacement products, non-factor therapies and gene therapies – in the European Haemophilia Consortium New...
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Global dosing hold in fitusiran trials initiated by Sanofi Genzyme to investigate new adverse events
A joint statement of the World Federation of Hemophilia (WFH), European Haemophilia Consortium (EHC) and National Hemophilia Foundation (NHF) November 6, 2020 – The WFH,...
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A Patient Videoconference on Inhibitors & New Novel Therapies – Answering Your Questions!
On November 2, 2020, the CHS held a live educational videoconference aimed to improve the understanding of FVIII/FIX inhibitors and treatment options, with a...
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Access to Innovative and Curatives Therapies – NRBDO virtual conference
NOVEMBER 5-7 Many innovative and curative therapies are coming to market for rare blood disorders, but will they be available to Canadian patients? What is...
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COVID-19 updates
Access the most updated information regarding COVID-19 and inherited bleeding disorders: www.hemophilia.ca/covid-19
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WFH Advisory: availability of desmopressin
WFH Advisory: availability of desmopressin pending re-start of intranasal desmopressin manufacture
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Products in the pipeline
It is an exciting time in the treatment of people with bleeding disorders with many coagulation products having been recently approved by Health Canada or...
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Coagulation products
www.hemophilia.ca/coagulation-products
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WFH publishes 3rd Edition of the Guidelines for the Management of Hemophilia
The World Federation of Hemophilia (WFH) has published the 3rd Edition of the Guidelines for the Management of Hemophilia, replacing the 2nd Edition published in...