Community News
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The WFH Gene Therapy and Bleeding Disorders Registries
WFH Gene Therapy Registry, presented by Dr. Barbara Konkle For many years gene therapy has been in the future – but now, for an increasing...
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CHS Submission to the Canadian Agency for Drugs and Technologies in Health (CADTH) on Hemlibra
Montreal, July 21, 2020 – The Canadian Hemophilia Society has in recent days made submissions to both CADTH (Canadian Agency for Drugs and Technologies in...
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Home delivery for plasma protein products now in place
Montreal, May 21, 2020 – The Provinces and Territories announced this week a home delivery service for plasma protein products and their alternatives, including coagulation...
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Patient-reported outcomes via MyCBDR and PROBE: essential to patient advocacy
Montreal, April 17, 2020 – In recent years, the creation of electronic tools that allow people with hemophilia (PwH) to report their health outcomes to...
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Updated Standards of Care sent for endorsement
Montreal, April 17, 2020 – The Canadian Integrated and Comprehensive Care Standards for Bleeding Disorders have now been finalized and sent to stakeholders for endorsement....