Latest and Past News
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Findings from a CHS “Dream of a Cure” research project now published
Findings from a two-year research project on inherited platelet function disorders led by Dr. Catherine Hayward of McMaster University as principal investigator, funded by a...
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Dangerously high FIX levels reported in hemophilia B gene therapy
Montreal – June 29, 2020 – During the question-and-answer period of a session on gene therapy during the World Federation of Hemophilia’s virtual summit (June...
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Home delivery for plasma protein products now in place
Montreal, May 21, 2020 – The Provinces and Territories announced this week a home delivery service for plasma protein products and their alternatives, including coagulation...
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Biomarin’s gene therapy for hemophilia A to be called Roctavian
Montreal, May 14, 2020 – Biomarin announced on May 11 its gene therapy currently awaiting approval by the U.S. Food and Drug Administration will be...
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Interview with Nurul Islam, president of the Hemophilia Society of Bangladesh
Interview with Nurul Islam, president of the Hemophilia Society of Bangladesh, about the role twinning played on their success in getting their government to fund...
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2020: The International Year of the Nurse
The evolution of nursing care for Canadians with inherited bleeding disorders Nurses have been involved in delivering excellent care to people with inherited bleeding disorders...
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Message from CHS President, Paul Wilton
With every challenge comes opportunity. Imagine if we had set out to make all the changes the world has made in the past month. Transitioning...
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New CHS social media campaign for women and bleeding disorders
In 2019, the Canadian Hemophilia Society was proud to have tested a new social media campaign aimed at raising awareness of women and bleeding disorders...
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Patient-reported outcomes via MyCBDR and PROBE: essential to patient advocacy
Montreal, April 17, 2020 – In recent years, the creation of electronic tools that allow people with hemophilia (PwH) to report their health outcomes to...
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Updated Standards of Care sent for endorsement
Montreal, April 17, 2020 – The Canadian Integrated and Comprehensive Care Standards for Bleeding Disorders have now been finalized and sent to stakeholders for endorsement....
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Gene Therapy Updates
FDA grants priority review for Biomarin’s hemophilia A gene therapy San Rafael, California, February 21, 2020 – Biomarin Pharmaceuticals has announced that the U.S. Food...
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Patients’ and caregivers’ “lived experience” crucial in CHS submissions on product access
It’s an exciting time in care for people with bleeding disorders. In recent years, a number of novel therapies have come through clinical trials and...
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CHS CONTACT takes off!
Here we are at the launch of CHS CONTACT, our new online information platform. This much-anticipated debut coincides with World Hemophilia Day, a day to...