Attending biennial World Federation of Hemophilia World Congresses was a highlight of my professional career in the pharmaceutical industry. From my first congress in Ireland,...
Findings from a two-year research project on inherited platelet function disorders led by Dr. Catherine Hayward of McMaster University as principal investigator, funded by a...
Montreal – June 29, 2020 – During the question-and-answer period of a session on gene therapy during the World Federation of Hemophilia’s virtual summit (June...
Montreal, May 21, 2020 – The Provinces and Territories announced this week a home delivery service for plasma protein products and their alternatives, including coagulation...
Montreal, May 14, 2020 – Biomarin announced on May 11 its gene therapy currently awaiting approval by the U.S. Food and Drug Administration will be...
Interview with Nurul Islam, president of the Hemophilia Society of Bangladesh, about the role twinning played on their success in getting their government to fund...
The evolution of nursing care for Canadians with inherited bleeding disorders Nurses have been involved in delivering excellent care to people with inherited bleeding disorders...
With every challenge comes opportunity. Imagine if we had set out to make all the changes the world has made in the past month. Transitioning...
In 2019, the Canadian Hemophilia Society was proud to have tested a new social media campaign aimed at raising awareness of women and bleeding disorders...
Montreal, April 17, 2020 – In recent years, the creation of electronic tools that allow people with hemophilia (PwH) to report their health outcomes to...
Montreal, April 17, 2020 – The Canadian Integrated and Comprehensive Care Standards for Bleeding Disorders have now been finalized and sent to stakeholders for endorsement....
FDA grants priority review for Biomarin’s hemophilia A gene therapy San Rafael, California, February 21, 2020 – Biomarin Pharmaceuticals has announced that the U.S. Food...
It’s an exciting time in care for people with bleeding disorders. In recent years, a number of novel therapies have come through clinical trials and...
